My name is Kathryn. I have had Goldenhar Syndrome since birth. It affects my hearing (I am Deaf) and it also affects my spine, my heart, my kidneys, one side of my face is smaller, and I am missing an ear. I aslo have had Gillain-Barré Syndrome. This started soon after on of my jaw surgeries about four years ago. I don't feel exactly back to where I used to be but I have gotten pretty far.
The purpose of this blog is to share what is happening with people (family, friends, strangers). I have many different experiences from what people normally face. If one story or comment on this blog helps even one person I will be glad.
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